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Thanks very informative and helpful tips.
Hi Margot. When I was first diagnosed I watched that short film its was so well done. It’s good for people unaware of the condition and how it changes a person’s life.
Thanks
AlisonHi Denise. I’m a member of those facebook groups. I find them helpful.
AlisonHi Denise. I have cervical dystonia and truncal dystonia. The 1st botox treatment was in the left side of my neck and didn’t work. The 2nd treatment was in the right side which worked but the pulling to the left is worse. I live in Mt Gambier and travel to Geelong for treatment which is 4.5 hours away. I have been seeing a physiotherapist and have exercises that do help. I get very fatigued and work 2 x 6.75 hours a week in an office. I have difficulty walking and standing after a short period of time. There is no support group here that I know of.
AliHi I started getting symptoms after a physical assault. I was diagnosed late 2018. I have had 2 botox treatments. Can anyone suggest what else can help.TIA
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