Our Aim:

To provide appropriate, researched information for adults and children with dystonia, their carers and interested health providers.                                                                                                                                                                                                                           To increase community awareness of the condition.                                                                                                                                  To  ultimately fund seminars and assist with research.

Can you run, sew or bake cakes for dystonia? If you would like to assist DNA with fundraising activities please contact us.                                                                                                                                                                                                                                    Kerrie, Laraine & the DNA committee.

MyCause

You can now create your own campaign through MyCause to raise money for the Dystonia Network of Australia Inc.

DNA Banner July 2015 Kerrie & Laraine Co - Founders DNA Inc.

Kerrie & Laraine
Co – Founders DNA Inc. July  2015

 

ADVISORY BOARD APPROVED BROCHURES  
PROVIDED & WRITTEN BY DNA Inc.

 

 Australian Dystonia Awareness Month 1st – 30th September 2021 Inclusive

           Dystonia Network of Australia Inc. (DNA)     

Dear all, please celebrate Dystonia Awareness Month with us. We will not be letting our lockdown dampen our spirits. We have three new webinars for this month:
Dr Tjrk Lagrand, who is currently working with Dr Alex Lehn will be presenting Functional Neurological Disorders, including Functional Dystonia. This presentation is now on the DNA You Tube Channel. https://www.youtube.com/watch?v=t0xZtbDaLuY 
Melanie Boyce, PhD candidate and senior neurological physiotherapist will be presenting her research into Dystonia. This presentation is now on the DNA You Tube Channel. https://www.youtube.com/watch?v=Q0ED7RCgjF4
Dr Florence Chang will present Musicians’ and Forearm Dystonia. This presentation is now on the DNA You Tube Channel. https://www.youtube.com/watch?v=bIgvkh8oBvI
We will send invitations and more information soon. Don’t worry if you can’t make it as there will be recordings that we will send out.
As we do every year in September, we will be sending packs of brochures out to neurologists in all states so that patients can access them. Please let us know if you would like a pack sent to your specialist.
The amazing colleagues of one of our Victorian members have arranged, a morning tea, plant sale and a virtual Walkathon to celebrate Awareness month. If you would like to participate in this event and read a little of  Wendy’s story and the fantastic activities her colleagues are achieving for Wendy and Dystonia Awareness. Click on the link below:
We have attached a revised awareness snap and ask that you consider spreading it this month on social media.
As always, we are happy to send brochures and DNA tools if you are able to visit community centres and doctors’ surgeries.

for more infomation go to our: Press Releaseand News Storiespages on our web sitewww.dystonia.org.au or you can Email us mailto:info@dystonia.org.au if you would like to take part or have any Fundraising or Awareness ideas, we would love to hear from you.                                                                                                                                                                                                       Many thanks & warm Regards,                                                                                                                                                                    Kerrie, Laraine & the DNA Committee.

 

23/09/2021

Dear All,

As part of Dystonia Awareness Month, DNA was asked to participate in a podcast with The Advocate to raise awareness of dystonia and our activities. The Advocate is an online media service which is dedicated to promoting the activities of not-for-profit organisations and charities. Our Vice-President Denise Duclos was interviewed by podcast producer Carla Wijaya about Dystonia, DNA and supporting people with Dystonia. 
The link is attached if you’d like to listen to the podcast. There are two interviews and the Dystonia interview is the second. It starts at about 13 minutes. 

Our deepest appreciation to the Advocate                                                                                                                                                       Kerrie, Laraine and the DNA Committee.

 

 

 

DNA Dystonia 0.30 sec.  Radio Ad

 https://graingerfilms.us14.list-manage.com/track/click?u=aeb92dd1b51ef92f7a7d8cdd4&id=e2959c0e9a&e=2db8f9e4b4 

2019 Free Charity Announcement

 

 

 

Dear All,

fundraising has been very difficult over the last fifteen months as it has been for all charities and Not For Profit organisations. So, we are asking our members, their families and friends to dig deep and take part in a raffle with the attached canvas, “Mountain Top to the Valley Floor” as the prize. The photograph doesn’t do this painting justice. The painting is from one of our own members, Linda Quimby, who is an artist from NSW.  You can google some of Linda’s other work or search for her on Facebook.

The dimensions of the painting are 66cms square.

The tickets are $5 each and you can pay by electronic transfer into the Bendigo Account as follows:

Account Name: Dystonia Network of Australia Inc.

BBSB: 633000

Account number: 163138233

or by going into the DNA website, www.dystonia.org.au

and paying by credit card or PayPal as a donation.

Using either of these options, please ensure you write raffle and your name so we can send you the tickets.

We will draw the raffle on 30 June via zoom and a general invitation will be sent out.

Thanking you all in advance.

Warm Regards,

Kerrie, Laraine & the DNA Committee

 

 

9/9/19

ABC Health Report on Dystonia

Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Doctor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link:

https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220

With Permission of                                                                                                                                                                                    James Bullen
Producer, Health Report,                                                                                                                                                                                                                             ABC Radio National  Sydney, Australia

 

 

DNA Benefit Night:

Inaugural Benefit Night at Terranova Bar & Restaurant

1647 The Horsely drive, Horsely Park NSW 2175

Thursday 28th April 2016

The Auction & Benefit Night on 28 April 2016 at Terranova Bar & Restaurant was a great suc-cess. Around 200 people attended, all with the intention of enjoying the atmosphere, the won-derful food and drinks and generously giving to a great cause. DNA cleared $16,000 from the event. Many Thanks to our hosts and also to those of our members who donated to the night and those who gave auction items.

 

We would like to acknowledge the people from DNA who donated to the success of the night in various ways:

Our thanks go to Marina McShannon, Phil Mangan, Leah Ding, Jacqui Sutton and Eric Williams. The main sponsors  for the evening will be posted  on the website soon.

_________________________

        

Fundraising for 2015

1. Trivia Night, Springwood Country Club, Springwood, Blue Mountains, NSW  Saturday 25th July   Download Trivia Night Flyer

DNA Office Bearers,2015 Anne, Phil, Kerrie, Robyn & Laraine

DNA Office Bearers 2015,  Anne, Phil, Kerrie, Robyn & Laraine.

 

What a great night!! raising $3,500

What a great night!! making $3,500 after expenses.

 

DNA inaugural trivia fundraiser 2015

DNA inaugural trivia fundraiser 2015 with 100 family and friends attended the trivia night.

On behalf of myself, Laraine and the DNA committee, we wish to give our heartfelt thanks to everyone who supported us and took part in our Inaugural Dystonia Awareness Campaign and Fundraiser. We have been overwhelmed with everyone’s  generous donations of  money and prizes. It was an absolutely fantastic night with around 100 people attending the trivia night. It was really wonderful to see all of our families and friends gathering together to support Dystonia!! After all our expenses we raised the amazing amount of $3,500.00 which will go towards the reprinting of our brochures so we can start delivering them to all the Botox Clinics,  MDS Neurologists and Hospitals in Australia as well as providing new members with their packages.

 

2. City to Surf, August. It is a fantastic sunny day for the City2Surf I wish Laraine , Ann, Claire and Candy a Wonderful Day for our Dystonia Awareness and Fundraising see you at the end!!!!

                                             _________________________                                                 

Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.    

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.

We are registered with the  Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014, and a Medical and Multidisciplinary Advisory Board.