ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc
Dystonia Network of Australia Inc. (DNA) is pleased to announce Australia’s Dystonia Awareness Month on the Government Calendar 1st – 30th September 2022 inclusive. Stay tuned to our press release and news stories pages
The following publications can be downloaded.
Not a member? Join today to assist us to continue to provide dystonia resources.
Brochure – Writers Cramp
Brochure – Blepharospasm
Brochure – Cervical Dystonia
Brochure – Spasmodic Dysphonia
Brochure – Genetics in Dystonia
Brochure – Generalised Dystonia
Brochure – Psychogenic Dystonia
DNA now has a dedicated You Tube Channel. Dystonia Network of Australia Inc. – YouTube
Australian Dystonia Awareness Week 2020 The Hills Radio Interview Adelaide
Adelaide Hills Radio as well as some other country radio stations have been running our ad for dystonia awareness week. Chris Carpenter, General Manager of Adelaide Hills Radio, interviewed Kerrie & I last Thursday 3rd September 2020 about Dystonia and DNA. We won’t be giving up our day jobs any time soon but it went pretty well except for a couple of audio glitches.
With Permission of The Hills Radio Adelaide
DNA Dystonia 0.30 sec. Radio Ad
ABC Health Report on Dystonia
Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220
With Permission of James Bullen
Producer, Health Report, ABC Radio National Sydney, Australia
Australian Dystonia Awareness Month 1st – 30th September 2021 Inclusive.
Dystonia Network of Australia Inc. (DNA)
Many thanks & warm Regards, Kerrie, Laraine & the DNA Committee.
for those of you who haven’t heard this, here is a link to Dr. Alex Lehn’s talk and Q&A in 2018 on Functional Neurological Disorders (FND), an umbrella term which includes functional (psychogenic) dystonia. It’s quite long but really interesting. Dr. Alex Lehn is a neurologist in Queensland and an expert in FND. His ideas on understanding and treatment of this perplexing condition have influenced the care of people with this diagnosis. He also refers to a book, written by a nurse, that would be good for those of the members that are health professionals and the book has free access.
Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.
Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector. https://www.cc-dr.org/networks/apon/ & https://www.cc-dr.org/networks/apon/aponmembers/
We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)
Registered Charity ABN: 66 348 949 649 and Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014, and a Medical and Multidisciplinary Advisory Board.
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