Current Trials and Studies - Dystonia Network of Australia Inc

Diet and Dystonia Survey – Dystonia Europe

This is an anonymous survey which is being conducted by Dystonia Europe to assess how diet affects dystonia. If you wish to participate you can access the survey here.

Focal Hand Dystonia Research Trial – Sydney

This is a clinical trial assessing the role of MRI guided focused ultrasound (MRgFUS) in individuals aged over 18 who have an established diagnosis of focal hand dystonia, either writer’s cramp or musician’s dystonia, and who have failed or poorly tolerated medications and/or botulinum toxin therapy. The treatment being trialled utilises high frequency ultrasound beams to interrupt the pathways involved in generating the dystonia without requiring a surgical incision or open neurosurgery. The trial will be conducted in Sydney and will require regular face-to-face follow up over a 12 month period. To inquire about participating in this trial please contact Dr Joel Maamary via email – joel.maamary@svha.org.au

Cervical Dystonia Research Study Trial – Melbourne

This study is being conducted by Deakin University researchers. They are seeking people with a diagnosis of cervical dystonia to participate in a trial involving Transcranial magnetic stimulation (TMS), a non-invasive brain stimulation technique. To find out more about the study please click here.

Alfred Neuroscience Bio-databank

The Bio-databank has been established at the Alfred Hospital, Melbourne to collect clinical data and biological samples from people with a number of neurological diseases and conditions such as dystonia. To participate, you must be a patient of Alfred Health. For more information please click here.

Global Dystonia Registry

This is a worldwide initiative of the Dystonia Medical Research Foundation. People with dystonia are invited to join the registry and supply information about their dystonia. By collecting information from different patient populations across the world it is hoped that the de-identified data will be able to be used to support future dystonia studies, including clinical and research trials. To find out more about the Global Dystonia Registry and join please click here.