Very few fiction books have been written by or about people with dystonia. The following information has been provided by the author of the book ‘Life & Music’.
Monty Raymond’s new novel is available in paperback and eBook at Dystonia: Monty Raymond or you could ask your local library to order it in and help spread awareness of dystonia. A portion of profits from sales is being donated to dystonia research and support. Follow donations on the ‘Corgipaw Films and Books’ Facebook page.
When Cecelia, a strong-willed, solo orchestral musician, experiences a strange twist of her head while performing in a concert, her first instinct is to tell no-one. When it happens again and she can no longer play, she finally admits to her sweet, introspective husband, Sebastian, that something is happening. Her doctor diagnoses her symptoms as a mental health disorder, which divides Cecelia’s friends and colleagues. As disability takes over Cecelia’s life, and her financial situation deteriorates, Sebastian must rise to the challenge as her carer, but, facing the loss of his dreams to become a screenwriter, he walks out. A new diagnosis brings hope of treatment for Cecelia, when a neurologist tells her she has dystonia, a permanent movement disorder, but suspicion lingers amongst her colleagues. Told that her condition means she’ll never play music again, let alone perform a much anticipated concert with her idol, Luciano Pavarotti, Cecelia is forced into the fight of her life, as she tries to save face and save everything she has ever loved.
A feature length screenplay of the story, Out of Tune: Out of Time, is currently available for production.
Further information can be found on the ‘Corgipaw Films and Books’ Facebook page.
Corgipaw Films has also produced the short film ‘Dystonia’ based on this story. It can be watched here. A subtitled version can be watched here. The film can also be watched on the Corgipaw Films website here.
Diagnosis Dystonia: Navigating the Journey was written by author, life coach and public speaker Tom Seaman. The book details his dystonia diagnosis and journey, offering coping skills, healthy living strategies and treatment options. It may be purchased directly from Tom’s website Tom Seaman Coaching (check shipping costs from USA) or through Amazon Australia, Booktopia, Book Depository and Dymocks. Please check availability and shipping costs before ordering. (Image used with permission of Tom Seaman).
Beyond Pain and Suffering: Adapting to Adversity and Life Challenges was also written by Tom Seaman. It provides practical concepts and strategies for how to cope and manage with pain and suffering. It may be purchased directly from Tom’s website Tom Seaman Coaching (check shipping costs from USA) or through Amazon Australia, Booktopia, Book Depository and Dymocks. Please check availability and shipping costs before ordering. (Image used with permission of Tom Seaman).
If you would like a copy of Jean-Pierre Bleton’s physiotherapy handbook please contact us with your request and provide your postal address. There is no cost for the book but there is a postage and handling fee of $10.50. This can be paid into our bank account: Account Name: Dystonia Network of Australia Inc. BSB: 633 000 Account No: 163 138 233. DNA thanks Merz Pharmaceuticals and Debbie Marques for providing these books.
Please note that DNA is not endorsing these books but providing information about them as they may be a potential resource for people with dystonia.
Page updated 13 November 2023
