ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc.
The Dystonia Network of Australia Inc. (DNA) Advisory Board To May 2015
| Name | Position |
|---|---|
| Associate Professor Victor Fung | Director Movement Disorders Unit, Department of Neurology, Westmead Hospital & Sydney Medical School, University of Sydney |
| Associate Professor John O’Sullivan | Coordinator of Movement Disorders Service, Royal Brisbane & Women’s Hospital, Associate Professor of Medicine at the University of Queensland |
| Associate Professor Thomas Kimber | Neurologist, Adelaide SA |
| Doctor Neil Mahant | MBBS PhD FRACP, Department of Neurology, Westmead Hospital, Sydney |
| Doctor Stephen Tisch | Consultant Neurologist, Staff Specialist in Neurology, Head of Neurophysiology, St Vincent’s Hospital, Conjoint Senior Lecturer University of New South Wales |
| Doctor Richard Peppard | Movement Disorder Neurologist, Hawthorn, Victoria |
| Doctor Benjamin Jonker | Neurosurgeon, Royal Prince Alfred Hospital and St Vincent’s Hospital, Sydney |
| Doctor Jeff Blackie | Department of Neurology, John Hunter Hospital, Newcastle |
| Doctor Florence Chang | Department of Neurology, Westmead Hospital, Sydney Neurologist |
| Doctor Julian Rodrigues | MBBS, FRACP Neurologist, Perth WA |
| Associate Professor Russell Dale | Department of Neurology, The Children’s Hospital at Westmead, Sydney |
| Doctor Shekeeb Mohammad | Department of Neurology, The Children’s Hospital at Westmead, Sydney |
| Doctor Michel Tchan | Clinical Geneticist, Genetic Medicine, Westmead Hospital, Sydney |
| Melani Boyce | Senior Physiotherapist in Neurology, Westmead Hospital, Sydney |
| Associate Professor Lynley Bradnam | Physiotherapist, University of Auckland, New Zealand. |
| Julie Rope | Physiotherapist, New Zealand |
| Graham Menzies | Clinical Neuropsychologist, Department of Medical Psychology, Westmead Hospital, Sydney |
| David Tsui | Clinical Nurse Consultant/Movement Disorders, Department of Neurology, Westmead Hospital |
| Brigitte Moseley | Pharmacist, Blue Mountains |
| Mary Jones | Parkinson’s disease/ Movement Disorders Specialist Clinic Nurse, Hawthorn, Victoria |
| David White | Retired lawyer, Blue Mountains |
| Greg Partington | Advocate for people living with Dystonia, NSW |
Australian Dystonia Awareness Month 1st -30th September 2020 Incl.
Dystonia Network of Australia Inc. (DNA)
Dear all, please celebrate Dystonia Awareness Month with us. We will not be letting our lockdown dampen our spirits. We have three new webinars for this month:
Dr Tjrk Lagrand, who is currently working with Dr Alex Lehn will be presenting Functional Neurological Disorders, including Functional Dystonia on Tuesday 14 September 2021 at 6pm EST
Melanie Boyce, PhD candidate and senior neurological physiotherapist will be presenting her research into Dystonia, date TBA.
Dr Florence Chang will present Musicians’ and Forearm Dystonia on 24 September 2021 at 6pm EST
We will send invitations and more information soon. Don’t worry if you can’t make it as there will be recordings that we will send out.
As we do every year in September, we will be sending packs of brochures out to neurologists in all states so that patients can access them. Please let us know if you would like a pack sent to your specialist.
The amazing colleagues of one of our Victorian members have arranged, a morning tea, plant sale and a virtual Walkathon to celebrate Awareness month. If you would like to participate in this event and read a little of Wendy’s story and the fantastic activities her colleagues are achieving for Wendy and Dystonia Awareness. Click on the link below.
We have attached a revised awareness snap and ask that you consider spreading it this month on social media.
As always, we are happy to send brochures and DNA tools if you are able to visit community centres and doctors’ surgeries.for more infomation go to our: Press Release and News Stories pages on our web site www.dystonia.org.au or you can Email us mailto:info@dystonia.org.au
Hope you are all coping as well as you can during lockdown. Keep safe.
Many thanks & warm Regards, Kerrie, Laraine & the DNA Committee.
DNA Dystonia 0.30 sec. Radio Ad
Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.
https://www.healthdirect.gov.au/australian-health-services/23030054/dystonia-network-of-australia/services/leura-2780-denman
Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector. https://www.cc-dr.org/networks/apon/ & https://www.cc-dr.org/networks/apon/aponmembers/
We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)
ICD Classification lnternational Statistical Classification of Diseases and Related Health Problems
(lCD), a medical classification list by the World Health Organisation (WHO). lt contains codes for diseases, signs and symptoms, abnormal findings, complaints, social circumstances, and external causes of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.
Registered Charity ABN: 66 348 949 649, Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014 and a Medical and multidisciplinary Advisory Board.
