September 2023 – Goldfields FM radio interview with Wendy and Trish

In this interview Wendy describes how dystonia has impacted her life and Trish talks about what their local community is doing in September to raise awareness of dystonia. Listen to the interview here.

2023 – American Brain Coalition Podcast – Advocacy Champions

In this podcast representatives of the Dystonia Medical Research Foundation (United States) discuss the importance of dystonia awareness and advocacy. A link to listen to the podcast is here.

2023 – International Parkinson and Movement Disorder Society

The Society has a series of podcasts on their website. As at June 2023 there are nine about Dystonia. To go to the podcasts on their website click here. To find the Dystonia podcasts please go to ‘Search Podcasts’ then type ‘Dystonia’ in the ‘Keywords’ field.

2021 – The Advocate Podcast

We participated in a podcast with The Advocate to raise awareness of dystonia and our activities. The Advocate is an online media service which is dedicated to promoting the activities of not-for-profit organisations and charities. Our Vice-President Denise Duclos was interviewed by podcast producer Carla Wijaya about Dystonia, DNA and supporting people with Dystonia.

The link is attached if you’d like to listen to the podcast. There are two interviews and the Dystonia interview is the second. It starts at about 13 minutes in.

2020 – Australian of the Year Dr James Muecke reveals he has dystonia

Dr Muecke is interviewed in this print article about his work on tackling obesity and the fact that he stopped performing surgery due to developing dystonia. Read the article here.

2020 – The Hills Radio Adelaide interview with Kerrie and Laraine

Kerrie and Laraine were interviewed on the 3rd September about dystonia and DNA. Listen to the interview below.

With permission of The Hills Radio Adelaide

2019 – ABC Health Report on Dystonia

The ABC radio program ‘Health Report’ produced an episode on dystonia during Dystonia Awareness Week in 2019. DNA members Robyn and Paul told their stories about dystonia. DNA advisory board member A/Prof Victor Fung spoke about botox and its effectiveness for treating dystonia. Advisory board member A/Prof Stephen Tisch spoke about movement disorders, a new MRI and gaps in gene research. Advisory board member A/Prof Lynley Bradnam spoke about different types of dystonia, its history and DBS surgery. Listen to the program here

2015 – Interview with Dr Kishore Kumar

Movement disorder neurologist Dr Kishore Kumar was interviewed by the Dubbo Weekender about different types of dystonia, using genome sequencing to study dystonia and the facilitation of this research by the Paul Ainsworth Family Foundation. Read the article here.

Page last reviewed and updated 26 June 2023