– Lily (aged 7)Dystonia – “Muscles behaving badly”
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"Jump For Dystonia" DNA Seminar August 2015Jump For Dystonia

Welcome to Dystonia Network of Australia Inc.

Dystonia is a movement disorder characterised by muscle contractions which can cause abnormal movements, twisting and postures of any part of the body. It may also be accompanied by tremor and pain. Dystonia Network of Australia Inc. (DNA) is the peak body in Australia for adults and children with all forms of dystonia. We provide a pathway to support, information, literature and community awareness for adults and children living with dystonia and their carers and health providers.

Our aims

  • To provide appropriate, researched information for adults and children with dystonia, their carers and interested health providers
  • To increase community awareness of the condition
  • To fund seminars, educational forums and assist with research into dystonia

What is Dystonia?

It’s the third most common movement disorder after Parkinson’s and Essential Tremor. Read about the types of dystonia, causes and treatments

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Newly Diagnosed?

Find movement disorder neurologists, allied health professionals, support organisations and read stories from people with dystonia

Find out More

Videos and Webinars

Watch informative videos and webinars about dystonia by specialist health professionals

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Dystonia Research

Read up to date articles and research papers about all aspects of dystonia from both Australia and overseas

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Latest Dystonia News

Rare Disease Day

29 February 2024 was Rare Disease Day which is held annually to raise awareness of all rare diseases.

Learn more

Q & A interview series

Read our interesting 5 minute interviews with an author/life coach/dystonia advocate, a dystonia researcher and a clinical trial participant.

Read here

Downloadable Dystonia Brochures

Access our downloadable brochures which have recently been updated

Learn more

Would you like to participate in a clinical trial?

Do you have cervical dystonia? Do you live in or near Melbourne? If so, you may wish to participate in a clinical trial conducted by Deakin University researchers. Participants will receive Coles vouchers and reimbursement of parking fees

Find out more

Books by and for people with Dystonia

Read books written by, about or for people with dystonia including the new fiction book about the dystonia journey of one of our members

Learn more

Member Zoom Chat Dates

22nd May
20th June
23rd July
21st August
19th September
24th October
20th November
19th December

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Can dystonia be caused by stress?

Frequently Asked Questions

Stress does not cause dystonia

But symptoms often get worse in stressful situations. This happens in most movement disorders.

Can dystonia go into remission?

Frequently Asked Questions

A small percentage of people will experience remission

Or a lessening of symptoms of their dystonia but these symptoms often return. 

Is tiredness a part of my dystonia?

Frequently Asked Questions

Many people report tiredness as part of their symptoms.

Tiredness could be due to the energy expended with constant involuntary movements.
More FAQs >>