2022 – ‘Dystonia’ – inaugural issue of journal devoted entirely to dystonia

The Dystonia Medical Research Foundation and Frontiers Publishing Partnerships are collaborating on a journal devoted entirely to dystonia articles submitted by health professionals. Their inaugural issue contains articles on the following:

  • Tremor in Writer’s Cramp Patients: A Retrospective Study
  • Observing the Diversity of Alleviating Manoeuvres in Cervical Dystonia
  • Approach to the Treatment of Paediatric Dystonia

Access the journal here.


2022 – Development of a patient journey map for people living with cervical dystonia
This interesting paper identifies issues of patients from pre-diagnosis through to long-term treatment. Read it here.


2022 – Deep Brain Stimulation in dystonia: factors contributing to variability in outcome in short and long term follow-up
This paper by one of our advisory board members, Dr Stephen Tisch, summarises the factors which may contribute to the outcome of DBS. Read about it here.


2022 – Dystonia
This paper brings together previous dystonia research and puts it together to form a concise, easy to understand summary of dystonia, types and categories, causes and treatment options. Read it here.


2022 – Trial of new measurement scale for musician’s dystonia
This interesting Italian study trialled a functional rating scale for musician’s dystonia which may help facilitate patients’ engagement in their treatment. Read it here.


2021 – Dystonia Management: What to Expect from the Future? The Perspectives of Patients and Clinicians Within DystoniaNet Europe
This is a very interesting article from DystoniaNet Europe which gives valuable insight into the patient’s experience, future possibilities and the importance of collaborating and networking to improve treatment and outcomes. Read it here.


2021 – Neurorehabilitation in Dystonia: A Holistic Perspective
To access this research paper about rehabilitation in dystonia please click here.


2020 – Treatment of Dystonia: Medications, Neurotoxins, Neuromodulation, and Rehabilitation
To access this informative research paper about dystonia treatments please click here.


2020 – Neurophysical insights in dystonia and its response to deep brain stimulation treatment
To access this research paper on deep brain stimulation please click here.


2019 – How satisfied are cervical dystonia patients after 3 years of botulinum toxin type A treatment? Results from a prospective, long term observational study
If you have cervical dystonia and are receiving or considering botulinum toxin therapy you may wish to read this study here.


2019 – Physical Activity and Exercise with Dystonia
To access this research article please click here.


2019 – Cervical Dystonia & Brain Mapping
A Deakin University Brain Mapping Study led by researcher Dr Daniel Corp was conducted in collaboration with Harvard University neurologists to identify areas of the brain that may be involved in the cause of cervical dystonia. To read about the study please click here.
 
Margot Chiverton was interviewed by Deakin University to add a human voice to their media message. Both Margot and Dr Corp are DNA members.
With permission of  Dr Daniel Corp, Elise Snashall-Woodhams of Deakin University and Margot Chiverton

To read a related research article co-authored by Dr Corp please click here.


2019 – Visual Compensation in Cervical Dystonia
To read the study on visual compensation in cervical dystonia click here.


2019 – Non Invasive Treatment for Tremor
St Vincent’s Public and Private Hospitals in Sydney are set to become the first facility in the southern hemisphere with the capability to provide a non-invasive brain treatment, MRI guided focussed ultrasound, for patients with tremor. To watch a report by 9News about the first patient to undergo the procedure please click here. To read more about the treatment in the St Vincent’s Clinic newsletter please click here.


2017 – Gait and Balance in Cervical Dystonia
To read the results of a study of balance, stepping reactions and gait in people with cervical dystonia click here.


2014 – Direct Current Simulation of Primary Motor Cortex and Cerebellum and Botulinum Toxin A Injections in a Person With Cervical Dystonia
To read about this study by Lynley V Bradnam, Joseph Frasca and Terese Jacobson Kimberley please click here.


2013 – Motor and Sensory Dysfunction in Musician’s Dystonia
To read about this study by Florence CF Chang and Steven J Frucht please click here.


2013 – Levodopa Responsiveness in Adult-onset Lower Limb Dystonia is Associated with the Development of Parkinson’s Disease
To read about this study please click here.


2013 – Clinical significance of pharmacogenic studies in tardive dyskinesia associated with patients with psychiatric disorders
To read about this study by Florence CF Chang and Victor SC Fung please click here.


2012 – Active exercise for individuals with cervical dystonia: a pilot randomised controlled trial
To read the abstract of this study by Melani J Boyce, Colleen G Canning, Neil Mahant, John Morris, Jane Latimer and Victor SC Fung please click here.


2012 – The Toronto Western Spasmodic Torticollis Rating Scale: Reliability in neurologists and physiotherapists
To read the abstract of this study by Melani J Boyce, Colleen G Canning, Neil Mahant, John Morris, Jane Latimer and Victor SC Fung please click here.