3rd December ’16

Dear Members, attached are the amended minutes from the DNA AGM. We thank everyone who sent suggestions for our business plan, we will be working on it to get it out on the last email before Christmas. All is going well with retrieving the money owed to DNA for the Auction & Benefit Night thanks to Kerrie’s persistence. Thanks also to Robyn who accompanied her on the visit to the restaurant. Still happy to take suggestions for the business plan. Since we have had no objections to Kerrie and I being a part of the members’ forum we will take part in the discussions and will be encouraging you all to use it.
It would be good to have members consider topics that they would like to see included in the 2017 DNA Seminar. We are still hoping that one of the other states might be willing to host it. We would give lots of support to assist. Learning from this year’s seminar, we are considering having a morning session for people with dystonia and their families in the am and health professionals in the afternoon.
Last but not least, in our aim to continually spread information about dystonia, next year we will be looking at getting packages out to those neurologists in the other states who we have not yet contacted. If you have a contact and would like a package sent out to you or wish us to send it please let us know. Since the ANZAN meeting in Perth in May we have had an extraordinary amount of hits on our web site from all over Australia and the DNA web site link has been added to many neurologists’ own web sites.
Warm Regards
Kerrie Jackson – President
Laraine McAnally – Public Officer

Amended president’s report 2016 pdf

Minutes AGM 22nd October-2016

Amended Minutes AGM 22 October 2016                                                                                                                                                   Income and expenditure 2015 to 2016.




We applied for and were granted an extension of time from the Director General of Fair Trading to delay our annual general meeting until after June 30 2015 so that we can have a financial report available by our auditor. Therefore DNA’s first annual general meeting will be held in early September 2015. The financial report will be issued and posted as soon as possible after this date.




                       Our progress over the next 12-18 months.

  • The newly formed DNA met with a retired charity lawyer, regarding advice  on our progress.
  • National organisation name accepted by Department of fair Trading  December 2013
  • Application for incorporation with Fair Trading December 2013 and DNA  incorporated on 6 January       2013. Election of DNA office bearers: Kerrie  Jackson – President / Anne Cooper; Vice President / Laraine       McAnally  – Public Officer and interim Secretary / Robyn McILvar – Treasurer.  Committee members: Sylvia May, Karyn Morgan, Peter Webb & Marina  McShannon
  • Web design /logo/ data base in early stages.March 2014 Brainstorming meeting with retired charity lawyer, where aims & objectives over the next three years were formulated in a strategic plan .
  • ASTA fund transfer to DNA March 2014
  • ABN awarded from ATO March 2014
  • Charitable status as Health Promotion Charity achieved with ACNC September 2014
  • DGR (deductible gift recipient) status registered with ATO November 2014 and backdated to September 2014.
  • November 2014 – Multidisciplinary Advisory Board recruited and completed with the appointment of Neurologists/Paediatric Neurologists/Neurosurgeon/Geneticist/Specialist Nurses/Physiotherapists/Neuroscientists/Neuropsychologist/General Practitioner/Pharmacist/Speech Pathologist/Retired Lawyer/Community advisors.
  • Laraine McAnally commenced writing of brochures in November 2014 for review and approval by the Advisory Board
  • Phil Mangan joins the DNA committee as Secretary – December 2015
  • Website building commenced and skeleton web site for training given to Kerrie Jackson
  • Kerrie mastered the complexities of adding information and photographs to the web site
  • April 2015 commenced design of website
  • Fundraisers organised for 2015
  • Trivia night 25 July 2015
  • City to Surf fundraiser August 2015
  • Auction & benefit Night October 2015
  • We have so many people to thank for their support, advice and guidance in helping us reach the membership stage of DNA. We are forever in their debt.

Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.


Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.   https://www.cc-dr.org/networks/apon/   &   https://www.cc-dr.org/networks/apon/aponmembers/

We are registered with the  Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014, and a Medical and Multidisciplinary Advisory Board.