New videos are regularly added. To go straight the DNA YouTube channel which has fifteen videos click here. Or select from the full range of videos below.
2024 Awareness Month Special – Interview with Yasmina McGlone
In this video Laraine interviews wheelchair footballer, motivational speaker and advocate Yasmina McGlone about living with myoclonus dystonia. Find out more about this inspirational young woman at Linktree – @yasminamcglone
2024 Awareness Month Special – Neuropsychology and Dystonia
In this video Denise and Laraine from DNA interview clinical neuropsychologist Dr Alex Knopman who explains what neuropsychology is and how it may help people with dystonia.
2023 Awareness Month Special – Genetics in Dystonia
In this video Australian neurologist Dr Kishore Raj Kumar talks about genetics in dystonia.
2023 Awareness Month Special – Latest Dystonia Research at Australia’s Deakin University
In this video Australian neuroscientist Dr Daniel Corp talks about current dystonia research projects at Australia’s Deakin University.
2023 – Dr Joel Maamary on Dystonia
In this video for the Brain Foundation, Sydney neurologist and PhD student Dr Joel Maamary explains dystonia, its causes and treatments. He also speaks about his current research project evaluating MRI guided focused ultrasound treatment for focal hand dystonia.
2022 – Coping Strategies Living with Dystonia, Pain and Chronic Illness – Tom Seaman Life Coach
This video provides information on coping strategies by Tom Seaman, who has dystonia. DNA is not endorsing Tom Seaman Coaching, but is providing this video as a resource for people with dystonia. Tom volunteers for the United States Dystonia Medical Research Foundation and has carried out significant work in promoting awareness of dystonia.
Oral Medications and Botulinum Toxins
This 2019 webinar was added to YouTube in December 2022. Neurologist Dr Mayank S Pathak discusses oral medications and botulinum toxin for a symposium organised by the United States National Spasmodic Torticollis Association.
2022 DNA Awareness Month Special – Mental Health and Dystonia
In this short video Sydney Movement Disorder Neurologist Dr Florence Chang talks about the effects of mental health on dystonia
2022 DNA Awareness Month Special – Task-Specific Dystonia
In this short video Sydney University Associate Professor Bronwen Ackermann and Dr John White talk about retraining for task-specific dystonia
2022 DNA Awareness Month Special – Tardive Dystonia
In this short video Sydney Movement Disorder Neurologist Dr Stephen Duma talks about tardive dystonia
2022 DNA Awareness Month Special – Australian Research
In this short video Melbourne PhD student Jordan Morrison-Ham discusses her research project on non-invasive brain stimulation techniques
2022 DNA Awareness Month Special – Australian Research
In this short video Sydney PhD student Dr Joel Maamary discusses his research project on MRI guided focused ultrasound in focal hand dystonia
Dystonia and Physical Therapy – Dystonia Medical Research Foundation
This 2022 hour long video from the Dystonia Medical Research Foundation provides excellent information on why physical therapy is important and gives suitable exercises for those with dystonia
International Parkinson and Movement Disorder Society
This organisation has some videos about dystonia on its YouTube Channel
Tom Seaman Coaching
Tom is a life coach, author, and speaker who has cervical dystonia. In his YouTube Channel he covers a variety of topics related to health issues and adapting to adversity in life, with tips, tools, and strategies for effective daily living. Videos vary in format from discussions to demonstrations
Benign Essential Blepharospasm
The videos from this symposium cover topics including Oromandibular Dystonia and Meige Syndrome, Overview of Blepharospasm Risk Factors, Botulinum Toxin: Injection Techniques and Toxin Choices, Dry Eyes and Photophobia, Deep Brain Stimulation Surgery for Blepharospasm, Exploring Alternative Management for Blepharospasm and a Q & A Session
Dystonia Europe
Dystonia Europe has a number of informative videos on different types of dystonia and treatment on their YouTube channel. Topics include classification of dystonia, drug treatment and research, botulinum toxin therapy, tremor, functional, cervical, Oromandibular and generalised dystonia, mental health and research projects.
Beyond Dystonia: Are we Detecting and Managing Non-Motor Symptoms Properly? – Dystonia Medical Research Foundation Canada
This 2022 video covers topics including treating and managing symptoms such as pain, depression and anxiety
Advances in Spasmodic Dysphonia – Dysphonia International
This 2022 hour long video gives an overview of research into Spasmodic Dysphonia and a question and answer session
Botulinum Toxin webinar – Dystonia Medical Research Foundation United States
In this 2022 hour long webinar, Dr Buz Jinnah explains all the considerations to obtain best results with botulinum toxin
Focal Dystonia and the search for a cure
In this 2022 interview, Michael Frazis from Frazis Capital Partners interviews Sydney Neurologist Dr Stephen Tisch about his work relating to focal dystonia
2021 DNA Awareness Month Webinar – Physiotherapy research
In this webinar senior neurological physiotherapist and PhD candidate Melani Boyce discusses her research into dystonia
2021 DNA Awareness Month Webinar – Musician’s and Forearm Dystonia
In this webinar Sydney Movement Disorder Neurologist Dr Florence Chang talks about musician’s and forearm dystonia
2021 DNA Awareness Month Webinar – Functional Neurological Disorder
In this webinar, Dr Tjerk Lagrand (from the Netherlands and at the time working in Brisbane with Dr Alex Lehn) talks about functional neurological disorders, including functional dystonia
2021 DNA Awareness Month Webinar – Deep Brain Stimulation
Dr Julian Rodrigues did a webinar on deep brain stimulation however due to audio issues we have provided a transcript of the webinar
2020 – Professor Tom Warner – Dystonia Drug Treatment
In this short video for Dystonia Europe, Professor Tom Warner describes the drugs commonly used to treat dystonia
2018 Dr Alex Lehn – Functional Neurological Disorder
In this webinar Brisbane movement disorder neurologist Dr Alex Lehn talks about functional neurological disorder for FND Hope
2016 Dr Florence Chang – What is Dystonia
Sydney movement disorder neurologist Dr Florence Chang talks about dystonia for the Brain Foundation
Page updated 14 September 2024
