Home Forums Member Forum How long to get diagnosed? Reply To: How long to get diagnosed?

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Mine was certainly a long period before I was diagnosed. I had symptoms for nine years before I finally saw a neurologist who immediately diagnosed me.
Before that I tried a lot of alternative treatments and was psychoanalysed by a GP who said it was anxiety.
Like Denise, finally I saw a physio who tried her treatments which didn’t work and made me worse, but she knew that meant I needed a neurologist. Finally someone who told me what I needed!
Wendy my guess is that my long story happened because it was so many years ago when much less was known about dystonia. It’s encouraging to hear that you and Denise had much shorter journeys in recent times.