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Hi I’m Robyn and I have cervical dystonia and dysphonia and I’ve had DBS surgery
I was first disgnosed with CD 28 1/2 years ago the first gp I saw diagnosed me so I was lucky
I had dbs surgery nearly 6 years ago and it has given me my life back
I developed dysphonia about 3 years ago and I’m having botox for that
I’m not on any other dystonia medication
to see my history you can look on the stories
I am the treasurer of this group