Reply To: Introduce Yourself – no longer in use – Please create a new post if you wish to introduce yourself

Reply To: Introduce Yourself – no longer in use – Please create a new post if you wish to introduce yourselfrobynmc2015-10-19T08:18:07+11:00

robynmc

Participant

October 19, 2015 at 8:18 am

Post count: 35

#816

Hi I’m Robyn and I have cervical dystonia and dysphonia and I’ve had DBS surgery
I was first disgnosed with CD 28 1/2 years ago the first gp I saw diagnosed me so I was lucky
I had dbs surgery nearly 6 years ago and it has given me my life back
I developed dysphonia about 3 years ago and I’m having botox for that
I’m not on any other dystonia medication
to see my history you can look on the stories
I am the treasurer of this group

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