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Hi Eric
My diagnosis took about 6 years as well (if I don’t count the 9-10 years prior when I experienced an easily tiring right arm.)
I’m quite surprised at just how long it takes, as I understand dystonia is not rare.
I am pleased the Botox has worked for you. What a relief! I have tried it just once – in muscles on the left hand side of my torso. It didn’t work so well for me, apparently because of the large size and number of muscles involved.
I have some minor spasmodic dysphonia. My voice goes croaky after a while and the left hand side of my throat hurts (a lot!) when I sing or make speeches. Consequently I don’t do much of either these days.
Do you have swallowing difficulties Eric?
Louise
