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Hello All, I’m Eric and have had Spasmodic Dysphonia for 25 years. Having read your blog Louise highlights a couple of issues. Firstly how modern technology and medical treatment can improve quality of life for sufferers of various dystonias.
My first symptoms onset coincided with me becoming an amateur radio operator (a Ham ) and gradually worsened. It took 6 years to receive a diagnosis in spite of referral to an ENT specialist. It was not until my wife heard of a vocal coach in the Blue Mountains who I had several sessions with who suggested my GP refer me to a particular specialist.
A great relief to know at last what was happening to me. I then commenced botox treatment which helped me enormously.
Later when I developed epilepsy, and commenced taking sodium valproate, my botox dose was reduced greatly.
Well that is a little bit about me.