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What an absolutely horrific and convoluted journey you have had to reach your diagnosis of dystonia. However, on the brighter side – if there is one – they did get the Widow Maker and some other problems on the the journey. I wish you all the best now you have got your diagnosis and hope that once you see a specialist, life will improve for you.
There is also another wonderful group – a private Facebook Group – Australia Dystonia Support Group. Both these groups have helped me on those very dark days. The people who run both these groups are amazing.