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It sounds like you’ve had a tough time. I also have Cervical dystonia but was lucky to be diagnosed relatively quickly. I hope your appointment with your neurologist goes well. Mine referred me to a physiotherapist who is familiar with dystonia. Together we developed some exercises and stretches which have been really helpful in reducing pain and giving me a greater range of movement. But I’ve also developed jaw issues and am awaiting a splint which I hope will improve things a bit.
I hope you manage to find a treatment regime that works well for you.