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Hi all

I’m a writer and journalist. Found out last year the hand tremors I’ve had since I was a kid are a thing called Dystonic tremor. I’d always thought I had essential tremor. Also have cervical dystonia – bad neck pain, poor movement. Using meds and botox for the respective conditions. I am also writing a memoir that will include stories about dystonia but not just. Keen to talk to you Margot Chiverton about your story if you are prepared to. Please ping me if you are.

Best to all of you with this dastardly thing.