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Hi Michael
You have certainly had a bad run of treatment what type of work do you do?
What state do you live in? As each state has catch ups which would be good for you to meet others who have Dystonia
I had antibodies to Botox and couldn’t have treatment for many years and kept pushing myself to work but I worked for the state government so I couldn’t be discriminated against so that was good I did explain to those around me what was happening and gave them brochures you can download from this site which helped a lot I felt that the more informed they were the more they knew they could ignore what was happening and not worry about working with me
I ended up having dbs which did give me my life back but I’ve retired now
Hope everything works out for you keep us updated