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robynmc
Member
Post count: 35

Wayne
Dbs can take some time to get settings right it’s a team effort to keep working on them I think some people give up but you can’t they will eventually find a setting for you
As for the new treatment you saw on tv my neurologist is involved with that treatment he tells me it will be about 9 or 10 years before they get to Dystonia patients and they will start with writers cramp first as Dystonia is the the hardest to work on with this treatment they have started with essential treatment from the time the show was on tv on the Thursday night to Monday when I saw him he had 80 outside referrals he has been inundated they will then move to Parkinson’s and then Dystonia
The cost is very high as Medicare isn’t approved yet