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All sounds really interesting Margaret. No hurry with sending things, just when you’re ready.
Yes I think it sounds easier to get someone started here, and then build up some research here (or in NZ).
With time and persistence it may just happen.
It would be great to have an alternative like that.
I responded well to retraining with a neuro physio in combination with botox in my early years after diagnosis, although eventually the symptoms returned. I was performing at a high level as a musician so it was just too hard on the dystonia I think.
But for people who can avoid overstressing the dystonia, the retraining could have more chance to be long lasting I would hope.