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Hi there

I’m Margot and I have cervical dystonia. I was diagnosed in 2000. My symptoms first appeared only when playing my instrument at work but then started happening away from the instrument too.
My symptoms became worse in 2009 when an involuntary left turn started as well as my involuntary right turn.
My treatment is regular botox injections and I work part time in admin now because of the condition.
I started tai chi a couple of years ago and have felt like it has improved my quality of life.
I’m quite active in supporting people with dystonia in various groups, although I am keeping some more limits around it so that I don’t get worn out.
I long for the day when some better treatments are found, so I enjoy hearing about new research.