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Hi I’m Mandy. I’ve been suffering with Cervical Dystonia for 35 yrs. Wasn’t diagnosed until around 15 or so yrs ago. My GP had never heard of Dystonia before! I read an article in a waiting room that encouraged me to ask the question – could I possibly have Dystonia? Prior to my diagnosis I was told I was “possessed by the devil” or it was all in my head (ie. mental illness). Have tried various treatments over the years including oral medication and Botox injections; seen 3 x Neurologists; Physio, Chiropractic, massage and relaxation. I am at the point where I’m searching once again for some relief/treatment. Hoping to seek out a treatment plan that will include – Neurology, GP, Physio, daily self-care/meditation, diet and exercise – to manage symptoms. I’m interested in hearing from others who have had successful treatments and how they manage their day-to-day.
