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robynmc
Participant
Post count: 35

Hi Wayne
as you can see from previous posts I have Cervical Dystonia and Dysphonia and after getting antibodies from long term botox I had dbs surgery which has basically given me my life back my daughter has also developed writers cramp and dystonia in her jaw and shoulder
we are all fighting this terrible condition but everyone is there for you
where do you live as we do have catch ups and if one is near you we would love to meet up with you
since having this condition I have met up with some wonderful friends that share this condition who I now class as friends for life
done stay isolated as there many avenues to talk and meet up
Robyn