The Global Dystonia Registry’s main aims are to support future clinical and research trials into dystonia and use the information entered to identify the common features among the many different types of dystonia.

We have requested from the Global Dystonia Registry that DNA have a direct link to the registry so that members or visitors to this site who have not already registered with them can access the link and enter their information. We will update this information when we are contacted.

 

16/10/21                                                                                                                                                                                    Dear All                                                   Dystonia Coalition  

The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups from all over the world including Australia, with experts in diagnosing, treating and researching all forms of dystonia  

Dystonia Network Of Australia Inc. now has our link on the Dystonia Coalition website

Please see the link: https://www1.rarediseasesnetwork.org/cms/dystonia/Get-Involved/Patient-Advocacy