International Dystonia Organisationsadmin@dystonia
Over the next few months we intend to build up a list of additional information sites to add to your dystonia knowledge. If you would like to name a site or service for our excellence award please contact DNA
Australian Dystonia Awareness Month 1st – 30th September 2021 Incl.
Dystonia Network of Australia Inc. (DNA)
Dear all, please celebrate Dystonia Awareness Month with us. We will not be letting our lockdown dampen our spirits. We have three new webinars for this month:
Dr Tjrk Lagrand, who is currently working with Dr Alex Lehn will be presenting Functional Neurological Disorders, including Functional Dystonia on Tuesday 14 September 2021 at 6pm EST
Melanie Boyce, PhD candidate and senior neurological physiotherapist will be presenting her research into Dystonia, date TBA.
Dr Florence Chang will present Musicians’ and Forearm Dystonia on 24 September 2021 at 6pm EST
We will send invitations and more information soon. Don’t worry if you can’t make it as there will be recordings that we will send out.
As we do every year in September, we will be sending packs of brochures out to neurologists in all states so that patients can access them. Please let us know if you would like a pack sent to your specialist.
The amazing colleagues of one of our Victorian members have arranged, a morning tea, plant sale and a virtual Walkathon to celebrate Awareness month. If you would like to participate in this event and read a little of Wendy’s story and the fantastic activities her colleagues are achieving for Wendy and Dystonia Awareness. Click on the link below.
We have attached a revised awareness snap and ask that you consider spreading it this month on social media.
As always, we are happy to send brochures and DNA tools if you are able to visit community centres and doctors’ surgeries.
DNA Dystonia 0.30 sec. Radio Ad
The dystonia society
New Zealand Dystonia Patient Network is holding its Annual Seminar on Sat. 16/6/18 in Auckland
Click on this link to open the COVID-19 special newsletter: Dystonians in Lockdown 2020
Phillippa, Laraine, Jayne, Peggy, Alison & Kerrie
Strengthening the DNA & NZDPN Alliance at the DNA Seminar 2016
We regret to announce that because of the current Covid-19 outbreak we have decided to cancel the Annual Seminar, which was to be held on 16 May in Wellington. We are mindful of government and health advice to minimise social gatherings, and that we need to put the health of our community first. Please find attached advice from the Ministry of Health.
We will still hold an AGM this coming winter, and will endeavour to do this in a way that provides for appropriate personal separation! We will update you when arrangements are made.
NZ Dystonia Network
With permission of NZDPN
29 /06 /19
Dear All, there is a livestream dystonia session that you may want to view on the link below
Dystonia Europe Broadcast from Norway 5 – 6.30pm Today Australian time
Monika, Kerrie and Laraine 2014
Dystonia Europe – Newsletter
“Jump For Dystonia” Dystonia Network of Australia Inc. Seminar Aug. 2015