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Hi Robyn,
Thanks for your reply. Trust us to have the most difficult to diagnose and treat of the dystonias. So far, I have been very fortunate and am well controlled with my current regime. How rare is it to develop antibodies to Botox? I am so pleased DBS has given you back your life as well you know how debilitating this disease can be.

I am not surprised by the number of referrals your neurologist has had. Everybody would be lining up for such a quick, non-invasive treatment. We’ll have to sit it out until they get to the dystonias.

Look forward to hearing from you again.

Kind regards,